Epilepsy will impact 1 in 26 people throughout their lifetime. While epilepsy is common, the reasons, treatments, outcomes and associated complications vary widely between individuals.
We do our best work when we work together
The Pediatric Epilepsy Research Consortium (PERC) is a national collaboration of more than 60 US pediatric epilepsy programs. Founded in 2010 by physicians and scientists determined to find better treatments for their patients, PERC has grown to become the leader in pediatric epilepsy research by providing a network and infrastructure to facilitate collegial, collaborative, practice-changing research. Through fourteen special interest groups, PERC works to improve the care of every child with epilepsy. We are particularly committed to fostering development of future pediatric epileptologists by providing opportunities for junior investigators to join ongoing efforts and develop research skills.
Highlighted Research Projects
Special Interest Groups
Early Life Epilepsy (ELE) Special Interest Group
The Early Life Epilepsy SIG is a national group of clinicians and scientists whose mission is to facilitate collaboration on projects to improve our understanding and care of children with early life epilepsy (age of onset < 3 years). Membership Erika Axeen (Virginia) Donald Bearden (Emory) Anne Berg (Lurie Children’s) Sonal Bhatia (musc) Mike
Electrical Status Epilepticus in Sleep (ESES) Special Interest Group
The ESES Special Interest Group is a multicenter, collaborative effort to identify the best treatments and outcome measures to improve the care of children with ESES. Given the significant variability in terminology, diagnosis, management, and outcomes in children with ESES, our group aims to reduce the variability in this diagnosis and optimize the outcomes of
Health Equity Special Interest Group
Our investigators have two key goals: To determine what is known about health disparities in pediatric epilepsy and identify gaps in knowledge. To develop an agenda of multi-center research projects and recommendations for practice-changing interventions to work towards health equity. Members Karen Skjei, M.D. – El Paso Center for Seizures and Epilepsy B. Oyinkan Marquis,
Epilepsy with Myoclonic Atonic Seizures (EMAS)
We aim to further elucidate the natural history of EMAS, investigate the current diagnostic and therapeutic milieu, and move toward discovering, evaluating, and implementing the optimal treatments for this disease. This involves developing a comprehensive prospective registry to eventually identify biomarkers for treatment outcomes and also to establish best practices in the care of this
Epilepsy Behavioral Health Special Interest Group
The Epilepsy Behavioral Health group focuses on psychosocial and behavioral health factors that impact youth with epilepsy. Our member institutions Cincinnati Children’s Hospital Medical Center Phoenix Children’s, Children’s Hospital of Orange County Children’s National Medical University of South Carolina Hurley Medical Center Children’s Health Nemours Children’s Health Our projects Creating information resources to aid