Electrical Status Epilepticus in Sleep Special Interest Group (SIG)

The ESES Special Interest Group (SIG) is a multicenter, collaborative effort to identify the best treatments and outcome measures to improve the care of children with ESES. Given the significant variability in terminology, diagnosis, management, and outcomes in children with ESES, our group aims to reduce the variability in this diagnosis and optimize the outcomes of children with ESES.

ESES SIG Leader: Anthony Fine, M.D., Mayo Clinic

Current projects

Practice patterns in ESES
Manuscript in preparation

Upcoming/planned projects

  1. ESES modified Delphi consensus on terminology, diagnosis, management, and outcome measures
  2. Sleep potentiation of epileptiform spikes and sleep stage in ESES and other childhood disorders
  3. Steroid regimens, response, and relapse in children with ESES

Past projects

Where: Practice Patterns in ESES, AES 2021 Chicago IL
View: Fine Practice patterns in ESES live poster

Title: Treatment Practices and Outcomes in Continuous Spike and Wave during Slow Wave Sleep: A Multicenter Collaboration. Journal of Pediatrics May 2021. Pediatr Baumer et al. 2021 Treatment practices and outcomes

Member meetings

To join a Special Interest Group (SIG), please contact PERC’s Executive Director, Jane Zeender, at janeedperc@gmail.com. In order to join PERC, your institution must be a member, which currently involves the signing of a Memo of Understanding and a commitment from each member institution to actively participate in one or more SIGs. PERC’s Special Interest Groups typically meet via Zoom on a regular basis, in addition to meeting in person at national epilepsy conferences.