Electrical Status Epilepticus in Sleep (ESES) Special Interest Group

The ESES Special Interest Group is a multicenter, collaborative effort to identify the best treatments and outcome measures to improve the care of children with ESES. Given the significant variability in terminology, diagnosis, management, and outcomes in children with ESES, our group aims to reduce the variability in this diagnosis and optimize the outcomes of children with ESES.

Our investigative members

Adam Ostendorf – Nationwide Children’s
Adam Wallace – University of Wisconsin
Ann Hyslop – Stanford
Anthony Fine – Mayo Clinic
Dan Bernardo – UCSF
Bill Gaillard – Children’s National Medical Center
Carey Wilson – University of Utah
Christopher Carosella – Johns Hopkins
Daniel Arndt – Beaumont Health
David Hsu – University of Wisconsin
Donika Zogejani – New York Medical College
Elia Pestana-Knight – Cleveland Clinic
Fiona Baumer – Stanford
Heather Wied – Cincinnati Children’s Hospital
Dalila Lewis – Medical University of South Carolina
Lekha Rao – UCLA
Lucy Zawadzki – Akron Children’s Hospital
Jennifer Madan Cohen – Connecticut Children’s
Mark Schomer – Connecticut Children’s
Nancy McNamara – University of Michigan
Nilika Singhal – UCSF
Patricia McGoldrick – Boston Children’s Health Physicians
Rani Singh – Health
Reshma Naidoo – Nicklaus Children’s Hospital
Robert Stowe – Boston Children’s Hospital
Sarah Kelley – Johns Hopkins
Shanna Swartwood – University of Utah
Shital Patel – Duke
Sonal Bhatia – Medical University of South Carolina
Steven Wolf – Boston Children’s Health Physicians
Tesfaye Zelleke – Children’s National Medical Center
Tobias Loddenkemper – Boston Children’s Hospital
Wei Lui – Cincinnati Children’s Hospital

Current projects

Practice patterns in ESES
Manuscript in preparation

Upcoming/planned projects

  1. ESES modified Delphi consensus on terminology, diagnosis, management, and outcome measures
  2. Sleep potentiation of epileptiform spikes and sleep stage in ESES and other childhood disorders
  3. Steroid regimens, response, and relapse in children with ESES

Past projects

Where: Practice Patterns in ESES, AES 2021 Chicago IL
View: Fine Practice patterns in ESES live poster

Title: Treatment Practices and Outcomes in Continuous Spike and Wave during Slow Wave Sleep: A Multicenter Collaboration. Journal of Pediatrics May 2021. Pediatr Baumer et al. 2021 Treatment practices and outcomes

Member meetings

Every other month