Evaluation, Diagnosis, and Treatment of Dravet Syndrome: A North American Consensus.
Developing standards of care and identifying priority areas for research using a modified Delphi process. This project incorporated expert opinion from providers and patient’s families in North America to identify areas of consensus regarding evaluation of Dravet syndrome, use of genetic testing, treatment and ongoing management.
Wirrell EC, Laux L, Donner E, Jette N, Knupp K, Meskis MA, Miller I, Sullivan J, Welborn M, Berg AT. Pediatr Neurol. 2017 Mar;68:18-34
Additional information can be found at https://www.dravetfoundation.org/what-is-dravet-syndrome/nac/BACK TO MEMBER PROJECTS [+]