Affiliated Projects
Epilepsy will impact 1 in 26 people throughout their lifetime. While epilepsy is common, the reasons, treatments, outcomes and associated complications vary widely between individuals.
Epilepsy will impact 1 in 26 people throughout their lifetime. While epilepsy is common, the reasons, treatments, outcomes and associated complications vary widely between individuals.
A prospective study of all early life epilepsies focused on their evaluations, diagnoses, treatments, and early outcomes. Children from birth to 3 years of age with new onset epilepsy were followed prospectively for one year.
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In 2012, The Pediatric Epilepsy Research Consortium developed the National Infantile Spasms Consortium (NISC) database, which is a multicenter database enrolling children prospectively. Children with new onset infantile spasms between 2 months and 2 years of age were eligible for enrollment. Clinical information was collected at the time of diagnosis and 3 months after diagnosis. Treatment decisions for individual children were made by the treating clinician.
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The Pediatric Epilepsy Learning Healthcare System (PELHS) collects electronic health information from multiple sites and disseminates analyses to change practice and continuously improve outcomes for children with epilepsy. PELHS is a project affiliated with the Pediatric Epilepsy Research Consortium.
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The Pediatric Epilepsy Surgery Database is a prospective cross sectional study enrolling patients undergoing epilepsy surgery evaluation at 20 US pediatric epilepsy centers.